I'm sorry to hear that! It's sad that any disease can affect a child, especially when it's your child. I'm holding out hope that this will slow down his chest wall muscle and diaphragm right along with you. Keep up the good fight!
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He battles on regardless. I’m constantly amazed at the tenacity of young people who stare down adversity, and wonder at how little credit adults sometimes give them.
I spoke, just over the weekend to someone who had a child with DMD - more advanced than our son, and he used one of these machines, and still is reaping the benefits of it, so we are definitely hoping for similar results.